All About Me

As we begin the month of May I am taking on the social media challenge from the Ehlers Danlos Society and sharing my story.

I have what is called Hypermobile Ehlers Danlos Syndrome or hEDS for short. hEDS is a chronic connective tissue disorder. It affects everything from my joints to my internal organs.

I got diagnosed back in early 2024 however I have probably had this condition my entire life. Along with have hEDS I also developed Chronic Fatigue Syndrome (CFS) and Chronic pain.

I started this blog to educate the people around me as I may look okay on the outside but you never know what is going on behind closed doors. I want to share my journey and experience starting this month so that it gets recognised.

hEDS while it limits some things doesn’t stop the things I love to do. Infact it’s made me more in tune with my body and taught me how to listen to my own needs. I still do Girl Guides and Musical theatre but it different from when I used to do it.

While living with an invisible illness is tough ylu need to know what we have is real yet hidden ♡